Making the Best of a Bad Situation
“Mom, Dad, grandparents, aunts, uncles and cousins sobbed in private, but made it through the Thanksgiving weekend without letting vivacious, popular, smart-as-a-whip, 6-year-old Zach know about the incurable, neurodegenerative disease he has, or the cruel expectation that it will cripple him before it kills him.”
So began a November 2001 article by Daily Herald columnist Burt Constable. The article went on to say:
“All Zach knows is that he isn’t as good at playing goalie as some kids on his soccer team, and that his shaky handwriting was the only blemish (C- in penmanship) on an otherwise perfect report card.
He suspects nothing.
His parents know far too much. They got the word on Nov. 15 that their only child has Friedreich’s ataxia, a very rare neurological disease known to weaken muscles, slur speech, bend spines, force kids into wheelchairs and deliver an early death, generally in the form of ... Read More...
